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TRATTO DA :
http://www.iacfsme.org/IACFSMEConferenceMo...73/Default.aspx
THE 9th INTERNATIONAL IACFS/ME RESEARCH AND CLINICAL CONFERENCE
Peppermill Resort, Reno, Nevada, USA
12-15th March 2009
Summary by Rosamund Vallings, M.B., B.S.
...a me θ parso nulla di nuovo...
a parte Cheney con le staminali..
e che pur essendo del 99 non sapevo di questo
Cryptostrongylus pulmoni Lawrence Klapow
Pharmacologic and non-pharmacologic treatment advances
Effectiveness of oral NADH in the treatment of CFS - Jose Allegre (Barcelona Spain) concluded that oral NADH does not seem to modify clinical variables, but some benefits were seen in anxiety levels, but depression increased. In effort tests there was some significant reduction of maximum FC.
Partner relationship influence on functional capacity in CFS women A.Blazquez (Barcelona,Spain) Neurocognitive dysfunction correlated positively with the relationship and significantly influenced ventilation and supramaximal exercise.
Role of erythrocyte aggregation and deformability in CFS Ekua Brenu (Gold Coast<Australia) found that there were no abnormal changes in the rheological characteristics of erythrocytes in CFS. Deformability and aggregation are not therefore likely to be markers for CFS.
Post-Cancer Fatigue (PCF) is not associated with altered cytokine production Barbara Cameron (Sydney,Australia) findings argue strongly against the notion that PCF is mediated by peripheral inflammation.
Pacing as a dynamic embedded, embodied treatment/prevention strategy in CFS Bruce Carruthers (Vancouver,Canada) Pacing is a strategy that patients learn gradually to adjust their activity/rest sequences and treat their fatigue in a preventative way.
Oxygen toxicity as a locus of control for CFS Paul Cheney (Ashville, USA) Concluded that CFS is an oxygen toxic state. This is less a cause of CFS but a final common pathway downstream from etiologies, but which may determine outcome.
Cell associated therapy for CFS Paul Cheney (Ashville,USA) has found that therapy with low molecular weight peptides from cell-associated mammalian tissue homogenates (porcine) appear to offer significant benefit in CFS. Use of several tissue extracts appears to be more successful than only one.
Oxymatrine for the treatment of CFS associated with chronic enterovirus infection J.Chia (Lomita,USA) This treatment showed significant benefit, with a shift in immune response in the Th1 direction, which correlated with symptomatic response. Oxymatrine maybe an effective immune modulator in CFS before definitive antiviral therapy becomes available.
Serving Students with CFS and other chronic illnesses Patricia Fennell (New York, USA) described a workshop for educators to discuss the needs of of those with chronic illnesses. As a result educational services can be improved for students using the Fennell Four Phase Model.
US Government strategy and funding of CFS research compared to similar illnesses Kenneth Friedman (Newark, USA) Of the US Government research effort into neuro-endocrine-immune disorders (NEIDs), Lyme disease has shown the most progress. Despite the government spending more on GWI there is still no diagnostic test or specific medication. New research strategies and funding mechanisms are needed for illnesses such as CFS.
Amygdala retraining techniques may improve outcomes for patients with CFS Ashok Gupta (London,UK) had done a clinical audit of subjective outcomes. This revealed higher rates of improvement in comparison to remission rates in other intervention studies. No control or placebo group was used and future studies will incorporate this.
Treatment of Cryptostrongylus pulmoni, a new parasite found in CFS Lawrence Klapow (Santa Rosa,USA) This is a chronic roundworm parasite found in a number of patients studied. It reproduces in the lungs and GI tract. It appears to trigger CFS symptoms during its reproductive stage. Symptoms were relieved with Ivermectin, weekly inhalations with nebulised ethanol and treatment of the GI tract with anthelminthics.
Predictors of fatigue in patients with MS Anners Lerdal (Drammen,Norway) The main predictors of fatigue were fatigue scores and fatigue caseness at baseline. Poor general health and perceived cognitive impairment also predicted higher levels of fatigue.
Is there an association between exposure to chemicals and CFS? Luis Nacul (London,UK) existing evidence remains inconclusive as to the association between exposure to chemicals and CFS, and there is need for well designed epidemiological studies.
Similarities of CFS and autism spectrum disorders: comparison of blood co-infections Garth Nicolson (Huntingdon Beach,USA) Chronic infections are similar in both those with CFS and a large subset of patients with neurobehavioural disease. The 3 infections seen were mycoplasma species, Chlamydia pneumoniae and HHV6.
Effects of a dietary weight supplement on fatigue, appetite suppression and weight-loss: implications in CFS Garth Nicholson (Huntingdon Beach,USA) The product used was an amaylase inhibitor plus NT factor (HealthyCurb). Notable appetite suppression occurred coupled with significant weight loss. The group showed an overall decrease in fatigue, with improvement in lipid profiles and cardiovascular health. There were no adverse effects clinically or biochemically. This seems a safe option for those with CFS wanting to lose weight.
Improved renal function in CFS patients with IV immunoglobulin treatment Tae Park (Seoul,Korea) Improved renal blood flow as a result of this trial may be evidence of corresponding cerebral blood flow, as patients on treatment experienced improved cognition. A further poster looked at the risk of CFS patients developing chronic kidney disease. The risks showed decreased glomerular filtration rate in many CFS patients, and recommendations are that kidney function should be checked regularly in CFS. Cognitive function was further investigated in another poster with positive outcome in those treated with IV immunoglobulin.
Lymphatic drainage of the neuroaxis and the central rhythm impulse Ray Perrin (Preston,UK) hypothesized a model for pathological links to CFS. Cranial rhythm impulse may be the rhythm produced by a combination of cerebrospinal drainage of the neuroaxis and sympathetic induced pulsations of the central lymphatic drainage. Osteopathic manual treatment can reduce the severity of CFS.
Muscle fatigue in CFS and its response to a novel manual therapeutic response Ray Perrin (Preston,UK) found that post-exercise muscle function in CFS is improved following specialized osteopathic intervention. Fatigue in this disorder is considered not due to myopathic changes, but a consequence of other extrinsic causes, such as a reduction in lymphatic drainage.
VDR receptor competence induces recovery from CFS Amy Proal (New York,USA) has a working model of CFS in which a micorobiota of chronic pathogens accumulate a metagenome that is able to dysregulate the innate immune response, and cause the systemic inflammation characteristic of the disease. The process has been reversed using a VDR agonist (olmesartan medoxomil) and sub-inhibitory antibiotics.
A parent advocacy guide advising how to obtain educational services for children with neuroimmune disease Laura Baker (Santa Barbara,USA) and Karla Rogers (Nevada City,USA) produced a comprehensive resource guide to assist parents meet their childs educational needs.
Utilization of CFS continuing medical education courses Hao Tian (Atlanta,USA) this course was described and confirmed as an important online source for continuing medical education. There is a well utilized Primary Care course and one for allied health professionals. In a 5 month period, 283 participants received CME certificates.
The self-regulatory model in women with CFS and MS: illness representations, coping strategies and outcome - Elke van Hoof (Brussels,Belgium) Patients were shown to determine the degree of dysfunction and illness related behaviours in relation to their subjective experience of the disease. Findings in the study will help determine what strategies may be effective in improving function.
Treatment study of methylation cycle support Richard van Konynenburg (Springfield, USA) Treatment designed to support the methylation cycle appears very promising and seems worthy of a more controlled study. Results are consistent with the glutathione depletion-methylation cycle block hypothesis for CFS. Treatment included hydroxocobalamin, 5-methyltetrahydrofolate and folinic acid, with nutritional support
Edited by uonderuoman - 8/6/2009, 10:56.
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